Calgary Flames GM assistant Chris Snow announces ALS diagnosis in letter to hockey family

Calgary Flames assistant GM Chris Snow has been diagnosed with ALS, as announced Wednesday in a letter from his wife, Kelsie Snow.

In the letter, Kelsie explains how the two of them went down to Miami to meet “one of the best ALS doctors and researchers out there”, but were told that Chris was in the early stages of the disease.

“The next step, [the doctor] said, was to enroll Chris in a clinical trial for the most encouraging ALS gene therapy treatment to come along,” Kelsie wrote. “The drug is targeting a specific genetic mutation that has destroyed Chris ‘family” Chris recently died of ALS, and we lost both Chris’ paternal uncles and his 28-year-old uncle to the disease. “

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The two are leaning on this possibility, according to the letter, and say that Chris has been on trial for several months without knowing whether he is taking the drug or placebo. The infected area is confined to her right arm and forearm.

“One has to be the first person to live with ALS rather than die of it, and one thing I always know about Chris is that he finds a way. No matter the obstacle, no matter how unprecedented the situation is – that always, always finds a way, “Kelsie said.

While recognizing the impact the hockey community can have on supporting its members, Kelsie has set out the most desirable way to provide encouragement.

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“Be positive and optimistic with us, pray for us in any way we pray and don’t treat us – especially Chris – any differently than you always have. He is the same person today who was yesterday and will be the same face tomorrow tomorrow and two months in. Embrace your family, wipe away all the joy of every moment of your life, play with your kids and be present – all things Chris has always been great at.

“We continue to love and love our children. Of all the disasters this diagnosis brought, the idea of ​​telling both of them that they would lose their dad was the most overwhelming, but now we have hope and, we believe, a different story “

For those who want to help in a more tangible way, Kelsie offered a link to donate to ALS research at the University of Miami.

Kelsie closed the letter with one last call for action.

“The next most powerful thing you can do for us is to believe in this cure. Our hope is in the rooted results we believe we are seeing and with the optimism expressed by doctors who have spent their careers studying this disease. after Chris received his first dose of the test – “We’re here to make history.”

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